2.12.2013

Update, Why I Think We are Here Again, and Request for Your Thoughts

Not much to say here. They had me keep my Mon ultrasound and appt. The ultrasound showed the baby was smaller and the heart had stopped beating. I focused on my two miracles in the room and got through it (my mom was my childcare, but my kids have colds and junky coughs. Since my dad has surgery on the 20th-finally for his back!-they can't get sick for fear it will delay surgery so no childcare...). The appt was uneventful. Dr. S said he typically has an opinion on D&C if you are past 10 weeks (pro), but it was really my call at this stage. There are pros and cons I discussed last time. It seems unnecessary, but kind of a like a luxury in a way, to be able to know and control things. I am trying to hold out, and just tell myself if the waiting goes on too long then I can have surgery at any time. He said he can do it a day or two from when I call, so no rush. We haven't made any definitive decision. I feel like if I can wait, that will be best. I think surgery of any kind only aggravates infection and that it would be good if I had an IV of antibiotics running for any future surgeries. That is something I want to get the recommendation on for Dr. Toth and share with Dr. Hilgers. I imagine an email to Toth (he doesn't know what is going on yet) and a conference call with Dr. Hilgers is in my future, thought I am not in any rush at this point.

An email from Simone, so sweet, prompted an idea for the remainder of this post. She had some thoughts about what had may have lead to this miscarriage (factor V). I so appreciate her time and thought on this. The more eyes and heads around it, the better! We are all experts in this from experience and necessity, so I want to propose my thoughts (as I know its hard to remember all the little details) and then I am open to anyone's feedback about what might help or what might have gone wrong. No hurry, we aren't moving forward on anything for awhile, but it might help you all to have a recap and my thoughts.

Dr. Hilgers dx all our issues immediately. Before marriage. However, back then Dr. H didn't know as much about infection. I have a mycoplasma called ureaplasma urealycticum. Also my dh has been dx with Chlamydia prior to our marriage with repeated symptoms and treatment during our marriage. Both bacteria we know are insidious and the most we can do is try to keep it under control. The two weeks of doxy abx scripted initially were inadequate. We conceived our first two babies on TEBB cycles not knowing that was our clear sign the infection was still active. After that Dr. H knew more. We did 21 days biaxin and ten days cyclically on ttc cycles. We conceived on the third cycle as all other issues were managed. We did a 10 day clindamyacin IV. We abstained the whole pregnancy. We did another IV at delivery. We had our Charlie. We did an exact repeat with AJ the second I got my cycles back post nursing, after we got meds on board and confirmed good levels. That time we went straight into cyclical Biaxin with no 21 days first and I got preg first cycle. Also we did some orals every 8 weeks BTW first and last IV. All was well. When nursing was done with AJ and cycles returned (about 13 mos) they added meds in slower. I had more cycles and time to realize endo pain was back. I had surgery in June in Omaha. Dr. H found lots of inflammation, some endo, and blocked tubes he was able to clear. Whew! He had us stay on clomid that cycle, prob to get a level that month, but we were to avoid and didn't take our Biaxin. Additionally, I had TEBB which I hadn't had since 2nd miscarriage, but Dr. H said common with surgery. Honestly surgery can really flare up and spread infection. Anyway, I was lax taking aspirin and even missed thyroid, as well as lazy out of practice charting. Imagine my concern when we got preg. Here we knew what worked but hadn't done it. Plus body still healing. We did IV but still had a loss, post heartbeat (which was late and low). This cycle we conceived we were actively trying. We were on all our meds. But, and I think this is huge, on my Biaxin the TEBB returned pre peak. Dr. H changed me to cipro for 2 weeks. Dh too. So we took it through ovulation and past to finish dose (this was safer to do) and were told we could still ttc that cycle. I had some reservations because we wouldn't be seeing another cycle to see if TEBB was cleared. But when the doc dismissed them I didn't dwell on it. We ttc and were successful on the first cycle. The initial numbers were low. The growth of hcg numbers slowed. The ultrasound showed baby behind my dates. Heartbeat came late. These are my infection signs. Without abx it would have been a faster loss. And so, given all of this, I am fairly confident we have our culprit. The infection, aggravated by surgery, also is now not as responsive to Biaxin. Maybe 21 days and then cyclically would have been better. Maybe cipro didn't work and we would have seen TEBB the next cycle? Or maybe we needed all 14 days in prior to ovulation. Every baby lost was lost on a TEBB cycle. We will take this very seriously, even more than before, and be grateful we have a clear sign. We may be off to NY to do full tx with Dr. Toth. I am not sure. I know a conference call with Dr. H is in our future. And prob the anti inflammation diet as I am big eater of carbs and sugar and we saw all that surgery inflammation. We also have a ticking clock with tubes reblocking. Lots to think about. I hope this helps give you the big picture all in one place. But as I said, I appreciate everyone's time and thought and experience. I am happy for your input and welcome any thoughts on my logic here. I think the more heads we get around this the better.

12 comments:

Leila@LittleCatholicBubble said...

I am so sorry for your loss. My prayers are with you!

KJL said...

I am so so sorry. I'm praying for you, dear.

Alive in HOPE! said...

Oh my goodness... I am so sorry, J. :(

I have been so out of touch and had no idea... Please don't worry about the VM. All is well here. Taking it one day at a time in the big city. Will be praying for you and your beautiful family, both here and in Heaven!

(((Hugs)))

All in His Perfect Timing said...

I am so very sorry for the loss of your sweet baby. Know that you have my prayers.

Andrea Starosciak said...

Praying for you Jamie. Please let me know if there is anything else I can do.

JoAnna Wahlund said...

I'm so sorry for your loss.

JellyBelly said...

Continued prayers!

E said...

J, I am just so sorry. Even when expected this is so hard. Prayers for healing.

Anonymous said...

You are in my prayers, I know how hard it can be. He is a precious Saint now.
- colorado

Anonymous said...

I'm sorry for your losses.

I did think of something about which to ask your doctors and to research on your own, and that is resistance to antibiotics from prolonged/repetitive use.

Could it be that you have grown resistant to Bioxin? And/or is hubby growing a resistance to his antibiotics? It's something to be concerned about, not only for losing babies, but also for your (and hubby's) long-term health, because you don't want to have a different infection linger or worsen due to antibiotic resistance.

I'm not trying to be a Debbie Downer, just trying to make sure you investigate all pros and cons of your treatment, and I don't think I've seen you've mention this possibility (i.e., resistance) before.

Simone said...

I am sorry for your loss. =(

polkadot said...

I continue to hold you prayer. I'm so sorry for your miscarriage.